People Living With HIV Share Their First Symptoms as Experts Warn of Millions of New Future Cases

For many people, the earliest signs of HIV are subtle. Fatigue, mild rashes, or flu-like symptoms can appear without seeming alarming, and some experience no symptoms at all. Many learn their status only after a routine test, long after the initial infection. With global experts warning that millions more could contract HIV by 2030, these personal stories help others understand what early HIV can look like in real life.

In an online forum, one person described waking up after a full night’s sleep feeling unable to get out of bed. The exhaustion felt completely different from normal tiredness. Bloodwork later revealed an HIV diagnosis, even though the infection had likely been present for some time.

Another shared that just a week after a risky situation, they developed flu symptoms and unusual rashes. Because they rarely got sick, they ordered a free at-home HIV test. A faint positive line appeared within minutes—a moment they described as terrifying.

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