When eight-year-old Guilherme came down with what seemed like an ordinary cold, no one imagined it would turn into a fight for survival.
What began as mild symptoms escalated rapidly into a medical crisis. Before anyone could fully grasp what was happening, he was placed in a coma that lasted sixteen long days, with doctors unsure if he would ever wake up.
When Guilherme finally opened his eyes, he made one heartfelt request — a moment that has since touched people around the world.
In 2023, Guilherme Gandra Moura’s life changed in an instant when a simple cold developed into severe pneumonia. The sudden decline was terrifying for his family.
Hospital settings were not unfamiliar to Guilherme. He lives with a rare genetic condition called epidermolysis bullosa, or EB. This inherited disorder includes roughly thirty related conditions that cause the skin to blister from even the slightest friction or touch.
EB is extremely uncommon, affecting only about 8.2 out of every million live births in the United States. Some children with milder forms don’t show symptoms until they begin crawling or walking. For Guilherme, however, even minimal contact could result in painful wounds, making everyday life a constant challenge that demanded careful handling and vigilance.
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